| 18.06.2020 | Music | Added a new song: Dance again by Nathan Peterson |
| 18.06.2020 | Music | Added a new song: Olivia by Nathan Peterson |
| 20.04.2020 | Photos | Nouvelle photo d'Abdallah, bébé avec acranie et trisomie 18 |
| 20.04.2020 | Abdallah | Nouveau témoignage en français |
| 17.02.2020 | Vincent Ambrose | new story about Vincent Ambrose, baby born with anencephaly |
| 04.02.2020 | Podcasts | New links to podcasts about anencephaly |
| 14.01.2020 | 20 raisons | Nouvelle traduction: 20 raisons d'y réfléchir à deux fois avant d'interrompre une grossesse pour anencéphalie. |
| 17.12.2019 | Haven William | New story about Haven William, baby born with anencephaly |
| 11.11.2019 | Ambra | Update on Ambra's story for the 8th anniversary of her birth |
| 22.10.2019 | Folheto: Crianças com Anencefalia | New flyer in Portuguese |
| 19.09.2019 | Jessica Marie | Nuova storia in italiano / New story in Italian |
| 26.08.2019 | Fotos | New picture on the Spanish picture page |
| 26.08.2019 | Victoria | New story in Spanish |
| 19.07.2019 | Weiterbildungszyklus in Berlin | Stirbt ein Kind w&aauml;hrend der Schwangerschaft, bei der Geburt oder kurz danach, erscheint der Tod da,
wo er nicht erwartet wird. Im Kontinuum Elternwerden ist alles ausgerichtet auf Hinwendung und Fürsorge.
Es kommt zu Trennung und Abschied, wo gerade Beziehung am entstehen ist. Der Tod des Kindes erschüttert
die werdenden Eltern zutiefst. Die begleitenden Fachpersonen sind gefordert, innezuhalten und sich selber zu beruhigen. So dass sie den Eltern mitfühlend und haltgebend zur Seite stehen und sachkundige Geburtshilfe praktizieren können. Der Weiterbildungszyklus richtet sich an freiberufliche und in Institutionen tätige Hebammen, ÄrztInnen, Pflegefachleute, TherapeutInnen, SeelsorgerInnen und Fachleute aus verwandten Berufen, die ihr Fachwissen vertiefen, die Zusammenhänge mehr verstehen und ihr Tun reflektieren wollen. |
| 06.06.2019 | pamphlet in Indonesian | our anencephaly brochure is now available in Indonesian! |
| 03.06.2019 | pamphlet in Arab | our anencephaly brochure is now available in Arab! |
| 03.06.2019 | Links | New link to Sofia Ann's story |
| 19.03.2019 | Pictures | New pictures of Albi and Bobby |
| 19.03.2019 | Albi and Bobby | Update of Albi and Bobby's story | 28.01.2019 | Pictures | New pictures of Ozzie Isaiah |
| 28.01.2019 | Ozzie Isaiah | New story about Ozzie Isaiah, baby born with anencephaly |
| 24.01.2019 | Pictures | New pictures of Railyn Hope |
| 24.01.2019 | Railyn Hope | New story about Railyn Hope, baby born with anencephaly |
| 23.01.2019 | Fotos | Neues Foto von Hanna Madita |
| 23.01.2019 | Hanna Madita | Neuer Bericht über Hanna Madita |
| 15.01.2019 | Pictures | New pictures of Olivia-Elise |
| 15.01.2019 | Olivia-Elise | New story about Olivia-Elise, baby born with anencephaly |
| 20.11.2018 | Pictures | New pictures of Everly |
| 20.11.2018 | Everly | New story about Everly, baby born with anencephaly 10 Things that I learned from my daughter Everly and her diagnosis of Anencephaly |
| 05.10.2018 | Pictures | New pictures of Joshua Philip |
| 05.10.2018 | Joshua Philip | New story about Joshua Philip, baby born with anencephaly |
| 21.09.2018 | Il legame tra genitori e bambini affetti d’anencefalia | New page in italian |
| 14.09.2018 | Anencephaly Brochure | New versions of our anencephaly brochure are now available to be downloaded! |
| 16.08.2018 | Albi and Bobby | new story of twins |
| 25.04.2018 | Pictures | New picture of Wendy Belle |
| 25.04.2018 | Wendy Belle | New story about Wendy Belle, baby born with anencephaly |
| 26.03.2018 | Pictures | New picture of Brigid Valentine |
| 26.03.2018 | Brigid Valentine | New story about Brigid Valentine, baby born with anencephaly |
| 23.03.2018 | Prevention of anencephaly | New link to the PONTI study |
| 16.03.2018 | Pictures | New pictures of Charlotte Kathleen |
| 16.03.2018 | Charlotte Kathleen | New story about Charlotte Kathleen, baby born with anencephaly |
| 09.03.2018 | Pictures | New picture of Serenity Grace |
| 09.03.2018 | Serenity Grace | New story about Serenity Grace, baby born with anencephaly |
| 26.02.2018 | Sofia | New story in Portuguese nova história em português |
| 21.02.2018 | Informatieblad over anencefalie | New flyer in Dutch |
| 30.01.2018 | Links to birthplans | added new links to the birth- and parentingplans |
| 18.01.2018 | Fotos | Neue Bilder von |
| 18.01.2018 | Valentina | Neuer Erfahrungsbericht über Valentina, Baby mit Anenzephalie |
| 03.10.2017 | Pictures | New picture of Avery Ann |
| 03.10.2017 | Avery Ann | New story about Avery Ann, baby born with anencephaly |
| 31.07.2017 | Isbella Haydee | Nueva historia en español |
| 03.07.2017 | Анна и Тесс | New story in Russian |
| 08.06.2018 | Links to stories | New link to Silas Lee's story |
| 08.06.2018 | Links to stories | New link to Hazel Elizabeth's story |
| 27.05.2018 | Links to stories | New link to Lailah Joy's story told by her mom Melody in a postcast |
| 19.05.2018 | Links to blogs | New link to Jaycee's blog |
| 18.05.2017 | Pictures | New picture of Jaycee |
| 18.05.2017 | Jaycee | New story about Jaycee, baby born with anencephaly |
| 18.05.2017 | Flyer sur l'anencéphalie | Nouveau flyer en français |
| 18.05.2017 | 알림지 | New pamphlet in Korean |
| 18.05.2017 | Информация об анэнцефалии | New Pamphlet in Russian |
| 18.05.2017 | Infoblatt | Neues Infoblatt |
| 18.05.2017 | Pictures | New pictures of James Henry |
| 18.05.2017 | James Henry | New story about James Henry, baby born with anencephaly |
| 24.04.2017 | Links about cephalic disorders | New link to the blog about Jonathan, a boy with encephalocele |
| 04.04.2017 | David | neuer Erfahrungsbericht in Deutsch über David, Baby mit Encephalocele |
| 19.12.2016 | Информация об анэнцефалии | New page in Russian |
| 16.12.2016 | Link Check | All (hopefully) dead links have been deleted and when possible actualized |
| 02.12.2016 | Links | New link to the video of Evelyn Loraine |
| 28.11.2016 | Links texts written by fathers | New link to My first son, a pure memory |
| 11.11.2016 | Literatur | Neue Buchrezensionen: "Gehalten, wenn nichts mehr hält" von Katrin Schmidt "Viereinhalb Wochen" von Constanze Bohg |
| 09.11.2016 | Анук | Новая
история на
русском языке New story in Russian |
| 08.11.2016 | Pictures | New pictures of Ethan David |
| 08.11.2016 | Ethan David | New story about Ethan David, baby born with anencephaly |
| 26.09.2016 | Gilda Joann | New story about Gilda Joann, baby born with anencephaly |
| 16.09.2016 | Bibliography | New book "Maranomi: The story of Paxton Cole and Carys Rainn" |
| 16.09.2016 | Links | New link to Embracing Grace |
| 28.06.2016 | Links | New links to the video and story of Grace Elisabeth |
| 15.04.2016 | Fotoratschläge | Überarbeitung der Seite, neue Links |
| 11.04.2016 | Literatur | Neue Hinweise auf die Bücher "Dem Leid seinen Stachel ziehen", "Deine Schritte im Sand" und "Mein Sternenkind" |
| 11.04.2016 | Links in italiano | new links, book review of "Siamo nati e non moriremo mai più" |
| 11.04.2016 | Littérature | Nouvelle récension de livre: "Nous sommes nés et ne mourrons jamais plus" |
| 11.04.2016 | Bibliography | New book book review: "A Witness To Joy" |
| 04.04.2016 | Pictures | New pictures of Emmanuel |
| 04.04.2016 | Emmanuel John | New story of Emmanuel John, baby with anencephaly |
| 08.03.2016 | Pictures | new pictures of Kyra |
| 08.03.2016 | Kyra | update of Kyra's story |
| 31.12.2015 | Levi Nathanaël | New story in Dutch |
| 9.11.2015 | Links | New link to the song about Samantha |
| 09.11.2015 | Videos | New link to the video of Dasha. Watch how the Coordinated Care for Kids team at Florida Hospital for Children helped the Dennis family celebrate their daughter Dasah in the face of a devastating diagnosis. |
| 12.10.2015 | Kyra | new story about Kyra, a baby with anencephaly |
| 12.10.2015 | Pictures | new picture of Joy |
| 12.10.2015 | Joy | new story about Joy, a baby with anencephaly |
| 02.06.2015 | Pictures | new picture of Eira Rae |
| 02.06.2015 | Eira Rae | new story about Eira Rae, a baby with anencephaly |
| 11.05.2015 | Blogs | New link to the blog about Jesaiah Alexander |
| 11.05.2015 | Jesaiah Alexander | nueva historia en español |
| 04.05.2015 | Links to stories | New Link to Tessie and Noah's story |
| 27.04.2015 | Über uns | Wer ist hinter der anencephaly.info Website? |
| 27.04.2015 | About | Who is behind the anencephaly.info website? |
| 20.05.2015 | Links to videos | new link to the videos of Truett and Branch |
| 20.05.2015 | Links | new link to Scarlett and Vivienne's story, monoamniotic-monochorionic twins |
| 23.03.2015 | Organ Donation | new page: Can children with anencephaly participate in organ or tissue donation? |
| 20.02.2015 | Pictures | new pictures of Lucy Sunflower |
| 20.02.2015 | Lucy Sunflower | new story about Lucy Sunflower, a baby with anencephaly |
| 18.02.2015 | Links about pictures and keepsakes | new link to Heartfelt Australia |
| 11.02.2015 | Links to stories | new link to Lilly Kate and Cowen's story |
| 05.02.2015 | Pictures | new pictures of Marley Jane |
| 05.02.2015 | Marley Jane | new story about Marley Jane, a baby with anencephaly |
| 29.01.2015 | Pictures | new pictures of Wonderful Legacy |
| 29.01.2015 | Wonderful Legacy | new story about Wonderful Legacy, a baby with anencephaly |
| 26.01.2015 | Pictures | new pictures of Nathan Lukas |
| 26.01.2015 | Blogs | added a new link to Kristine's blog about her son Branch |
| 26.01.2015 | Korea, 셰인 마이클 헤일리 | 한국어 새 페이지, 셰인 마이클 헤일리 |
| 24.01.2015 | Nathan | new story about Nathan, a baby with anencephaly |
| 19.012015 | Вопросы (FAQ) | Новая
страница в
России new page in Russian |
| 19.01.2015 | Shane Michael | new story about Shane Michael, a baby with anencephaly |
| 19.01.2015 | Pictures | new pictures of Shane Michael |
| 15.01.2015 | Oliver | new story about Oliver, a baby with anencephaly |
| 15.01.2015 | Pictures | new pictures of Oliver |
| 17.12.2014 | Pictures | new pictures of Harlan |
| 02.03.2014 | Korea, 한국어 부분 | 한국어 새 페이지, 마르셀 & 막시밀리안 |
| 02.03.2014 | Korea, 한국어 부분 | 한국어 새 페이지, 튜제임스 & 노아레일레이 |
| 02.03.2014 | Korea, 한국어 부분 | 한국어 새 페이지, 안나 & 테스 |
| 24.09.2014 | Leo or the joy before us | new story about Leo, a baby with anencephaly |
| 25.09.2014 | Links | New link to Hearts & Halos, non profit about anencephaly |
| 24.09.2014 | Pictures | new pictures of Marvella |
| 24.09.2014 | Marvella Jean Love | new story about Marvella, a baby with anencephaly |
| 03.09.2014 | When Love Is Withheld From Us | new story in the family section: my sister had a baby with anencephaly |
| 03.09.2014 | Erop |
Новая история
на русском
языке new story in Russian |
| 26.07.2014 | Links | new links to the blog about Joy Marie and the video about Amalya | 06.07.2014 | Pictures | new pictures of Kaitlin Mary |
| 06.07.2014 | Kaitlin Mary | new story in English, Katie was alive for 9 months and 5 days |
| 24.06.2014 | Links | new links to the following blog Abigail Leigh new link to Abigail Leigh's video |
| 24.06.2014 | Pictures | new pictures of Abigail Leigh |
| 24.06.2014 | Abigail Leigh | new story in English |
| 04.06.2014 | Links | new links to the following blogs: Savannah Joy |
| 31.05.2014 | Pictures | new pictures of Presley Marie |
| 31.05.2014 | Presley Marie | new story in English |
| 13.05.2014 | Sample Advance Directive Birth Plan | new sample birthplan to download |
| 12.05.2014 | Support Group | new link to our support group on facebook |
| 12.05.2014 | Ryder William | new story in English |
| 06.03.2014 | Videos of babies with anencephaly | new link to Noah, Raylee Jo, Aubrey Elizabeth, Caleb John and Ryder Matthew's video |
| 02.03.2014 | Korea, 한국어 부분 | 한국어 새 페이지 |
| 12.02.2014 | Korea, 한국어 부분 | 한국어 새 페이지 |
| 06.02.2014 | Korea, 한국어 부분 | 한국어 새 페이지 |
| 03.02.2014 | Links to support groups | new link to One Day More |
| 30.01.2014 | Korea, 한국어 부분 | new section in korean of the anencephaly.info pages 한국어로 된 새로운 부분 |
| 23.01.2014 | Amalya Nathaniel | new story in English |
| 20.01.2014 | Texts written by fathers | new link to Glorifying God in Life and Death written by Joses' father Seth |
| 03.01.2014 | Links to stories | New links to the stories of Josephine Blevins, Jessie and Talia Finn | 03.01.2014 | Tapfere Knirpse | Neuer Link zu Tapfere Knirpse möchte von schweren Krankheiten betroffenen Kindern und deren Familien in einer schweren Zeit Mut machen. Wenn düstere Schatten die Familie bedrohen, möchten wir harmonische Momente fotografisch festhalten und ihnen Bilder voller Liebe und Zusammensein, voller Tapferkeit, Hoffnung und Kraft schenken. |
| 03.01.2014 | herzensbilder.ch | Neuer Link zu Herzensbilder.ch schickt Profi-Fotografen zu Familien mit schwerkranken, schwerbehinderten oder viel zu früh geborenen Kindern, um ihnen wunderschöne Familienbilder zu schenken. |
| 03.01.2014 | Italian Links | New link to a video about perinatal hospice care in Italian |
| 03.01.2014 | Domino | Neuer Link zu Domino, Zentrum für trauernde Kinder DOMINO bietet trauernden Kindern und Jugendlichen in Unterstützungsgruppen geschützte Räume, in denen sie ihren individuellen Trauerweg finden und ihre Trauergefühle kreativ durchleben können. |
| 03.01.2014 | Dein Sternenkind | Neuer Link zu Dein Sternenkind, Deutsches Informationsportal, das Fotografen vermittelt, die die sich auf einfühlsame Aufnahmen sterbender oder verstorbener Neugeborener spezialisiert haben. |
| 03.01.2014 | Liam und Luis | Neuer Link zu Liam und Luis' Geschichte in Bild und Ton |
| 02.01.2014 | Ethan Nicholas | new story in English |
| 14.11.2013 | pictures | New picture of Anastasia Joy |
| 14.11.2013 | Anastasia Joy | new story in English |
| 07.11.2013 | Links to blogs | new link to Annie Rachel's blog |
| 07.11.2013 | Links to videos | new link to Annie Rachel's video |
| 19.09.2013 | Questionnaire about the diagnosis | Would be willing to help me showing the participants of a conference about prenatal diagnosis what are the affected families' needs and experiences? Fill in the questionnaire! |
| 12.09.2013 | Fotos | Neue Fotos von Anna auf der deutschen Foto.Seite |
| 12.09.2013 | Anna Strauss | Neuer Erfahrungsbericht auf Deutsch |
| 06.09.2013 | Links to blogs | new link to Sophia's blog |
| 06.09.2013 | Links to videos | new link to Jude's video |
| 05.09.2013 | Links to helpful organisations | new links to Birthweight Buddies and The Kendall Keepsake Foundations |
| 03.09.2013 | Links to helpful organisations | new links to Sustaining Grace and Project Palmer |
| 02.09.2013 | Links to helpful organisations | new link to Joshua's Little Buddies, to Baby Boards |
| 01.09.2013 | Advice for taking pictures | new link to an article published in "The Lancet" by Todd Hochberg |
| 31.08.2013 | Links to twin stories | new link to the story of Laurencia and Valencia monoamniotic monochorionic twins |
| 31.08.2013 | Testimonianze | nouvi links in italiano |
| 19.08.2013 | Links to stories | new link to Ivan's story |
| 16.07.13 | Links about organ donation | new link to Purposeful Gift |
| 02.07.2013 | Erinnerungen | Neuer Link zu unserer Pinterest Seite |
| 02.07.2013 | Advice for caregivers | New links to Guidelines to use when speaking with parents who have received a potentially life-limiting diagnosis for their fetus or child and Practice Recommendations for Obstetric Ultrasonographers |
| 02.07.2013 | Help for affected families | New link to Loss Doulas International Advocates who help parents minimize regrets and maximize memories when a loved baby dies. |
| 02.07.2013 | Texts written by fathers | new link to the video A letter from Dad" |
| 23.06.2013 | Links to stories | new link to Skylar's story |
| 10.06.2013 | Memories and Keepsakes | Check out our new page on pinterest |
| 16.04.2013 | Förderpreis lebenpur | Wir haben einen Förderpreis gewonnen: Stiftung lebenpur, Pressemitteilung der Uni Erfurt |
| 15.04.2013 | Links to helpful sites for affected families | new link to Practice Recommendations for Obstetric Sonographers |
| 15.04.2013 | Links to helpful sites for affected families | new link to When your baby dies |
| 10.04.2013 | Eine ausführliche Rezension über unser Buch "Kinder mit Anenzephalie und ihre Familien" bei socialnet.de | |
| 08.04.2013 | Christopher und Harry | Neue Geschichte von Christopher und Harry, monochorial-diamniote Zwillinge, diskordant für Anenzephalie |
| 07.04.2013 | Fotos | Neue Fotos von Matthew und Noah, monochorial-monoamniote Zwillinge |
| 07.04.2013 | Matthew und Noah | Neue Geschichte von Matthew und Noah, monochorial-monoamniote Zwillinge, die beide Anenzephalie hatten |
| 07.04.2013 | Fotos | Neue Fotos von Jason und Carson, monochorial-monoamniote Zwillinge |
| 07.04.2013 | Jason und Carson | Neue Geschichte von Jason und Carson, monochorial-monoamniote Zwillinge |
| 31.03.2013 | pictures | New picture of Elizabeth and Lauren |
| 31.03.2013 | Elizabeth and Lauren | New story of Elizabeth and Lauren, identical twins (monochorionic, monoamniotic) discordant for anencephaly |
| 29.03.2013 | pictures | New picture of Oran |
| 29.03.2013 | Oran and Jude | New story of Oran and Jude, identical twins discordant for anencephaly |
| 24.03.2013 | pictures | New picture of Matthew and Noah and Makenna |
| 24.03.2013 | Matthew James and Noah Ryleigh | New story of Matthew James and Noah Ryleigh, identical twins who both had anencephaly |
| 23.03.2013 | Zwillinge | Neue Sektion für den deutschen Teil der Website |
| 12.03.2013 | Links to stories | New links to stories of twins discordant for anencephaly |
| 11.03.2013 | Makenna | New story about Makenna, baby girl born with anencephaly |
| 23.02.2013 | Organ donation | Baby Amalya, a Multi-Organ and Gift of Body Donor, Continues to Give Life |
| 16.01.2013 | pictures | New picture of Madilynn Anahera, baby girl born with anencephaly |
| 16.01.2013 | Madilynn Anahera | New story about Madilynn Anahera, baby girl born with anencephaly |
| 29.12.2012 | Support groups | New link to Every life counts, an online outreach based in Ireland |
| 10.12.2012 | Organ donation | What happens after you donate organs to research? Presentation of a mom who donated her son's organs to research |
| 29.11.2012 | pictures | New picture of Kassidy Briana, baby girl born with anencephaly |
| 27.08.2012 | Kassidy Briana | New story about Kassidy, baby girl born with anencephaly |
| 22.11.2012 | Fotos | nueva foto en español |
| 22.11.2012 | Leah Abigail | nueva historia de Leah Abigail, bebé con anencefalia |
| 05.11.2012 | Links about organ donation | New links |
| 05.11.2012 | Deutsche Links | Neuer Link auf die Geschichte von Luna, ein Mädchen mit Anenzephalie |
| 09.10.2012 | Links support after loss | New link to the A little Lifetime Foundation of Ireland |
| 09.10.2012 | Links for caregivers | New link to the Series on Stillbirth in The Lancet |
| 14.09.2012 | Literatur | Neue Buchempfehlung: "Sommerstürme" von Karen Kingsbury |
| 11.09.2012 | Blogs | new links to Peter Benedict's, Amelia Lynn's, Eden Marie's, Colin's, Kassidy's, Evan Parker's, Hailee Kate's and Aliyah Joy's blogs |
| 08.09.2012 | Blogs | new link to Kendall Mackenzie's blog |
| 31.08.2012 | Prevenção da anencefalia | Nova página em Português |
| 31.08.2012 | Pesquisa que está sendo feita sobre a anencefalia | Nova página em Português |
| 23.10.2011 | Relatório sobre o nascimento e a vida de bebês com anencefalia | Nova página em Português |
| 31.08.2012 | Links em português | New links to Livia Sophia and Mariana |
| 27.08.2012 | pictures | New picture of Joshua Melvin, baby boy born with anencephaly |
| 27.08.2012 | Joshua Melvin | New story about Joshua Melvin, baby boy born with anencephaly |
| 17.08.2012 | pictures | New picture of Bethani Beryl, baby girl born with anencephaly |
| 17.08.2012 | Bethani Beryl | New story about Bethani Beryl, baby girl born with anencephaly |
| 19.07.2012 | Descargar | Folleto sobre Anencefalia |
| 09.07.2012 | Konferenz und Elterntreffen | Am 2. November 2012 findet das diesjährige Elterntreffen an der Universität Erfurt statt und am 3. November
der
öffentliche Fach- und Begegnungstag: Abschied in Würde, Hilfe und Begleitung nach infauster Prognose in der Schwangerschaft. Anmeldung und Informationen beim webmaster |
| 23.06.2012 | Mi Niña | nueva historia en español |
| 22.06.2012 | Videos | new link to Joshua Melvin's video |
| 14.05.2012 | Links | New link to the story of Gabriel |
| 11.05.2012 | Links em português | New links |
| 24.04.2012 | Links about cephalic disorders | New link to Global Hydranencephaly Foundation |
| 29.03.2012 | Fotos | New pictures of Luca on the Dutch picture page |
| 29.03.2012 | Luca Isaiah | new story in Dutch |
| 27.03.2012 | Music | new video and lyrics of the song "hello, goodbye" by Michael W. Smith |
| 23.03.2012 | pictures | New pictures of Theo Nathaniel, baby boy born with anencephaly |
| 23.03.2012 | Theo Nathaniel | New story about Theo Nathaniel, baby boy born with anencephaly |
| 22.03.2012 | about pictures and keepsakes | New link to In Our Hearts Pendants |
| 19.03.2012 | pictures | New pictures of Kevin Christopher, baby boy born with anencephaly |
| 19.03.2012 | Kevin Christopher | New story about Kevin Christopher, baby boy born with anencephaly in 1979, alive for 20 days |
| 15.03.2012 | Wie Freunde und Familie helfen können | vollständige Ueberarbeitung der Seite für Familie und Freunde |
| 06.03.2012 | Videos | new link to Isaac Brigham's video |
| 06.03.2012 | Liens en français | Nouveau lien vers l'association Coeurs de Papas |
| 05.03.2012 | Videos | new link to Grace Mary, Sophia Grace and Grayson James' videos |
| 01.03.2012 | pictures | New picture of Dorian Gabriel, baby boy born with anencephaly |
| 22.02.2012 | pictures | New pictures of babies born with anencephaly |
| 22.02.2012 | Juliana Lucille | New story about Juliana Lucille, baby girl born with anencephaly |
| 17.01.2012 | Rachel Alice | Update of Rachel Alice's story |
| 01.02.2012 | Songs for grieving parents | New song from Matt Hammitt "All Of Me" |
| 17.01.2012 | Rachel Alice | New story about Rachel Alice, a little girl with anencephaly |
| 07.01.2012 | Ambra's grandmother | New story written by Ambra's grandmother |
| 07.01.2012 | Private pictures | New pictures on the private page for parents |
| 04.01.2012 | pictures | New picture of Ambra Storm |
| 04.01.2012 | Ambra Storm | New story about Micah and Kyle's daughter Ambra Storm |
| 03.01.2012 | Literatur | Neue Buchbesprechung |
| 03.01.2012 | littérature | nouveau livre ajouté |
| 03.01.2012 | Bibliography | new books added |
| 03.01.2012 | Taylor Wayne | Update about Taylor's little sister |
| 29.12.2011 | Noah Tobias | new story of Noah Tobias, baby with anencephaly |
| 21.12.2011 | Videos | new link to Jordyn Alexander's video |
| 18.12.2011 | Links | new links to Cameron's and Emily's blogs about their daughter Caroline Grace |
| 13.11.2011 | Stephanie | Update of Stephanie's story |
| 23.10.2011 | Links em Português | new link to Diário da gestação de um bebê com anencefalia |
| 23.10.2011 | Grupo Vida Acrania e Anencefalia | Apoio e contato entre pais de bebês com acrania e anencefalia |
| 23.10.2011 | Links em Português | new links to blogs |
| 23.10.2011 | Criando vínculos | Nova página em Português |
| 20.10.2011 | Pictures | new pictures of Madeline, baby with anencephaly |
| 20.10.2011 | Madeline Grace and Molly Rose | new story of Madeline Grace and Molly Rose, twins discordant for anencephaly |
| 20.10.2011 | Macy Ann | new story of Macy Ann, baby with anencephaly |
| 10.09.2011 | Videos | new link to the videos of Angelo Honrubia, Audrey Faith, Aurelia Rose, Brayley Jane, Carleigh McKenna, Esther, Luca Isaiah, Marcus Miguel, Rachel Alice and Shana Rae |
| 07.10.2011 | Przygotowanie do narodzin Twojego dziecka | new page in Polish |
| 20.09.2011 | Facundo Ezequiel | nueva historia en español |
| 20.09.2011 | Isabella | nueva historia en español |
| 14.09.2011 | Pictures | new pictures of Carleigh, baby with anencephaly |
| 14.09.2011 | Carleigh McKenna | new story of Carleigh McKenna, baby with anencephaly |
| 10.09.2011 | Videos | new link to the video of Aliyah Joy |
| 09.09.2011 | links to blogs | new links to blogs about children with anencephaly Thomas Palmer Joseph Evan Matthew Carys and Paxton Elizabeth |
| 08.09.2011 | Pictures | new pictures of Khaylena, baby with anencephaly |
| 08.09.2011 | Khaylena | new story about Khaylena |
| 01.08.2011 | Christopher and Harry | new story about Christopher and Harry |
| 24.07.2011 | Carys and Paxton | new story about Carys and Paxton |
| 24.07.2011 | Twins | Coping with Anencephaly in a Twin pregnancy |
| 04.07.2011 | Links | new link to the story of Carys Rainn and Paxton |
| 29.06.2011 | Gina Christie | new story about a baby with anencephaly |
| 28.06.2011 | Stephanie Ann | new story about a baby with anencephaly |
| 07.06.2011 | pictures | new pictures of Leila Anne |
| 07.06.2011 | Leila Anne | new story about a baby with anencephaly |
| 07.06.2011 | Links | new links to stories about children with encephalocele |
| 07.06.2011 | Blogs | new links to blogs of parents of a baby with anencephaly |
| 26.05.2011 | Links for fathers | new link to Rob's blog about his daughter Charity Angelia |
| 11.05.2011 | Research about anencephaly | New questions added to the anencephaly report survey |
| 07.04.2011 | Christina | Neuer Erfahrungsbericht auf Deutsch, neues Foto |
| 30.03.2011 | Please don't hurt me | a mother speaks about the very special journey of carrying twins when one twin is not expected to live after birth |
| 30.03.2011 | Memories | new link to Happy Hands |
| 30.03.2011 | New address | The anencephaly information site has a new address. From now on, you can reach our pages also under www.anencephaly.info, easier to remember. The old address is still working and we will not take it down. |
| 30.03.2011 | Neue Adresse | Ab sofort können die Anencephalie-Seiten unter der einfacheren Adresse www.anencephalie.info aufgerufen werden. Die alte Adresse bleibt weiterhin gültig. |
| 30.03.2011 | Nouvelle adresse | Le site anencéphalie-info a reçu une nouvelle adresse plus simple à retenir. Vous pouvez maintenant nous trouver sous www.anencephalie.info. L'ancienne adresse restera cependant toujours valable. |
| 16.03.2011 | Stories | new quote on the story page |
| 14.02.2011 | Dutch site | new contact address |
| 06.02.2011 | Links about anencephaly | new link to Timothy Frank's blog |
| 05.02.2011 | Links about anencephaly | New link to David's story, 6 weeks old and doing well |
| 05.02.2011 | Songs for grieving parents | New song: Hold fast by Mercy Me |
| 04.02.2011 | Anna e Logan | Nova História em Português |
| 04.02.2011 | Robert William | Nova História em Português |
| 03.02.2011 | Anna Joy | Nova História em Português |
| 03.02.2011 | Camdyn | Nova História em Português |
| 03.02.2011 | links about anencephaly | New link to Dylan Jonathan's site |
| 03.02.2011 | Pictures of babies with anencephaly | New pictures of Konnor Scott |
| 03.02.2011 | Konnor Scott | New story about Konnor Scott, a baby with anencephaly |
| 28.01.2011 | Links about anencephaly | new section with links to texts and stories written by fathers of a baby with anencephaly |
| 18.01.2011 | Deutsche Links | Neuer Link zu Ambulante pädiatrische Palliativversorgung" in Schleswig Holstein |
| 14.01.2011 | Ultrasoundpictures of babies with anencephaly | New 3D ultrasound picture of Faith Elizabeth |
| 14.01.2011 | Pictures of babies with anencephaly | New pictures of Faith Elizabeth |
| 14.01.2011 | Faith Elizabeth F. | New story about Faith Elizabeth, a baby with anencephaly |
| 13.01.2011 | Pictures of babies with anencephaly | New pictures of Gracelyn Hope |
| 13.01.2011 | Gracelyn Hope | New story about Gracelyn Hope, a baby with anencephaly |
| 04.01.2011 | Literatur über Anenzephalie | Neuer Hinweis auf den Artikel "Wieviel Gehirn braucht der Mensch" von Andreas Zieger |
| 04.01.2011 | Links about anencephaly | new link to Anastasha Kalil's blog |
| 28.12.2010 | Links about anencephaly | new link to Cayla Annyse's memorial video |
| 15.12.2010 | Facts about anencephaly | Call for data: parents who have carried to term a baby with anencephaly are asked to answer some questions for a medical report. |
| 16.11.2010 | Shelley | New story about Shelley, a baby with anencephaly born in 1965 |
| 03.12.2010 | Fotos von Kindern mit Anenzephalie | Neue Bilder von Stella und Medeia, Zwillingsmädchen |
| 17.11.2010 | links sobre anencefalia | Novos links em Português |
| 17.11.2010 | Fotos | Novas fotos na página Português |
| 17.11.2010 | Amanda | Nova História em Português |
| 17.11.2010 | Vitoria de Cristo | Nova História em Português |
| 17.11.2010 | Malachi Samuel | Nova História em Português |
| 16.11.2010 | Stella und Medeia | Neuer Erfahrungsbericht über Stella und Medeia, Zwillinge diskordant für Anenzephalie |
| 16.11.2010 | Emily and Hayden | New story about Emily and Hayden, twins discordant for anencephaly |
| 16.11.2010 | Deutsche Literatur | Neue Rezension über das Buch "Dennoch gute Hoffnung" von Klaus Schäfer |
| 14.10.2010 | Carrying to term resources | New link to My Very Own Angel |
| 14.10.2010 | Links | New links to the stories of babies with anencephaly: Alfonso, Emma and Connor and Mary Therese |
| 15.09.2010 | Anna Joy | New story about Anna Joy, a baby with anencephaly |
| 15.09.2010 | Create memories | New link to Build A Bear who allows to add a personalized recording (your baby's heartbeat) into a stuffed animal that will play every time it's hugged |
| 13.09.2010 | Vitoria | New story and pictures about Vitoria, a baby with anencephaly who was born in January 2010 and is still alive! |
| 13.09.2010 | Links | New link to the blog about Vitoria de Cristo, a baby with anencephaly who was born in January 2010 and is still alive! |
| 07.09.2010 | Music | New song on the page with songs for grieving parents: Before the Morning, by Josh Wilson |
| 25.08.2010 | Links | Neuer Link zur Homepage von Hope Marie, Baby mit Anenzephalie |
| 14.08.2010 | Links | New link to the slideshow about Ella Christine, baby with anencephaly |
| 10.08.2010 | Links | New link to the blog about Karinne Claire, baby with anencephaly |
| 09.08.2010 | Jenna | Jenna's parents had another healthy subsequent baby! |
| 26.07.2010 | links | New link in Italian: La Quercia Millenaria |
| 26.07.2010 | Samuel David | La storia di Samuel David, bébé con anencefalia new story in Italian |
| 12.07.2010 | Links | Nouveau lien vers "Les berceaux du ciel", association s' occupant spécifiquement du deuil périnatal dans l'Ille-et-Vilaine. |
| 12.07.2010 | Links | New links to Noah Tobias's blog and video |
| 08.07.2010 | Mi Angel | La storia de Mi Angel, bébé con anencefalia new story in Spanish |
| 25.06.2010 | Liens | Nouveau liens vers l' Association pour un conseil global concernant le diagnostic prénatal |
| 21.06.2010 | L'attachement | L'attachement parent-enfant avec des enfants atteints d'anencéphalie |
| 21.05.2010 | Mercy Ships | New story about a baby with encephalocele that was succesfully removed on the hospital ship Africa Mercy |
| 21.05.2010 | Mercy Ships | Neuer Erfahrungsbericht eines Kindes mit Enzephalozele, das auf dem Krankenhausschiff Africa Mercy operiert werden konnte |
| 21.05.2010 | Mercy Ships | Nouveau témoignage d'un bébé atteint d'encéphalocele qui a pu être opéré sur l'Africa Mercy |
| 05.05.2010 | Blogs | New link to the blog of a family affected by anencephaly: Jack |
| 14.04.2010 | Creating Memories | New idea |
| 14.04.2010 | Blogs | New link to the blog of a family affected by anencephaly: Amelia Grace |
| 01.04.2010 | Subsequent pregnancies | New link to Anencephaly Support Sub Pregnancies |
| 29.03.2010 | Music | New song on the page with songs for grieving parents: He will carry me |
| 29.03.2010 | Marcel und Maximilian | Neuer Erfahrungsbericht auf Deutsch, Zwillinge von denen einer Anenzephalie hat |
| 19.03.2010 | Music | New song on the page with songs for grieving parents: Voice of Truth |
| 16.03.2010 | Music | New song on the page with songs for grieving parents: One More Day |
| 02.03.2010 | Music | New song on the page with songs for grieving parents: Smallest Wingless |
| 25.02.2010 | Foglio informativo | our pamphlet for parents who just got the diagnosis of anencephaly for their unborn baby is now available in Italian |
| 22.02.2010 | Music | New page with songs for grieving parents |
| 21.02.2010 | Blogs | New links to several blogs of families who had or are carrying to term a baby with anencephaly |
| 08.02.2010 | Deutsche Links | Neuer Link zu Früher Abschied Informationen für trauernde Eltern |
| 04.02.2010 | Support Groups | New link to Anencephaly.co.uk, an outreach for parents of a baby in anencephaly in the UK |
| 27.01.2010 | Article | New to download: article "Spontaneous pregnancy outcome after prenatal diagnosis of anencephaly" |
| 19.01.2010 | Publications about anencephaly | New blog with publications about anencephaly |
| 19.01.2010 | Blogs | New links to several blogs of families who had or are carrying to term a baby with anencephaly |
| 18.01.2010 | Blogs | New links to Mark Allen's and Benaiah Darwin's blog |
| 18.01.2010 | Video and slideshows | New link to Taylor James Collins' slideshow. |
| 14.01.2010 | Blogs | New link to Isabel Jane's blog |
| 18.12.2009 | The golden footprint notebook | Make a special notebook with your baby's footprint |
| 17.12.2009 | Emmett | New story in English |
| 30.11.2009 | Русский | New page in Russian |
| 30.11.2009 | Slovenski | New page in Slovenian |
| 30.11.2009 | Pamflet v Slovenski | Our pamphlet about anencephaly is now available in Slovenian |
| 24.11.2009 | Videos | New link to Emily Jean's video |
| 24.11.2009 | Blogs | New link to Emily Jean's blog |
| 20.11.2009 | Um arco-íris de pezinhos | Faça um arco-íris de pezinhos |
| 19.11.2009 | Der Spuren-Regenbogen | Wie Sie mit den Fussabdrücken Ihres Babys eine wunderschöne Deko machen können |
| 17.11.2009 | A rainbow of footprints | How to make a great wall decoration with your baby's footprints |
| 15.11.2009 | Preparation of the birth | New advice on the preparation page |
| 13.11.2009 | Flyer in Indonesian | Our pamphlet about anencephaly is now available in Indonsian |
| 13.11.2009 | Folheto Informativo | Folheto Informativo Crianças com Anencefalia em português |
| 13.11.2009 | Infoblatt auf Russisch | Unser Infoblatt ist nun auch auf Russisch verfügbar |
| 14.10.2009 | Save a baby's life | it's possible |
| 14.10.2009 | Retten Sie Leben | So können Sie das Leben eines Babys retten |
| 01.10.2009 | Sauvez la vie d'un bébé | c'est possible |
| 08.09.2009 | Memories of Jason | Jason's grandmother's eulogy |
| 29.07.2009 | Zak Nathan | New story in English |
| 11.07.2009 | Unser Buch ist da!!! | Nach mehrjähriger Forschungskooperation zwischen Spezialisten aus verschiedenen Gebieten und betroffenen Eltern konnte nun ein Buch herausgegeben werden, das ganz den Kindern mit Anenzephalie und ihren Familien gewidmet ist. Es enthält Beiträge aus der Medizin, der Sonderpädagogik, der Psychologie, der philosophischen und theologischen Ethik sowie auch Berichte betroffener Eltern. |
| 11.07.2009 | Clara and Caleb | New story in English |
| 11.06.2009 | Pictures | New pictures of Anthony Jr |
| 11.06.2009 | Anthony Jr | New story in English |
| 29.05.2009 | Deutsche Literatur | Neuer Hinweis auf das Buch "L(i)ebenswert" |
| 29.05.2009 | English Links | New link to the American child photographers Charity Guild |
| 29.05.2009 | Eoin | New story in English |
| 29.05.2009 | Pictures | New pictures of Jordan Marie |
| 14.05.2009 | Sarah und Philipp | Sarahs Geschichte wurde völlig überarbeitet und ergänzt |
| 01.05.2009 | Links | Anencephaly Information available now in Indonesian!! |
| 24.04.2009 | English Links | New link to William Jason's blog |
| 21.04.2009 | Peter | New story in English |
| 14.04.2009 | Bibliography | 'A Rose in Heaven', new book review added |
| 14.04.2009 | English Links | New link to Logan Quinn's blog |
| 06.04.2009 | Carmen Arviansyah | New story in English |
| 06.04.2009 | Samuel's saga | My sister-in-law had baby with anencephaly |
| 06.04.2009 | Pictures | New pictures of Samuel David and Carmen Arviansyah |
| 06.04.2009 | Samuel David | New story in English |
| 06.04.2009 | Kylie Marie | New story in English |
| 16.03.2009 | Bibliography | New books added to the list of helpful books |
| 04.03.2009 | Giovanna | A nova pàgina em Português està online |
| 25.02.2009 | Facts | New quotation by Dr. Paul Byrne |
| 12.02.2009 | Literatur deutsch | Neue Hinweise auf Zeitschriftenartikel und Filme |
| 06.02.2009 | Eltern-Kind-Bindung | Neuer Artikel auf deutsch |
| 05.02.2009 | Dutch Links | New links to Make a Memory |
| 05.02.2009 | Links | New links to blogs of families affected by anencephaly |
| 05.02.2009 | Bonding with a terminally ill unborn | New article |
| 22.01.2009 | Ajani Josiah | New story in English |
| 20.01.2009 | FAQ | New Illustration of a baby with anencephaly |
| 15.01.2009 | Taylor Wayne | update for Taylor's story |
| 09.01.2009 | Faith Elizabeth | New story in English |
| 07.01.2009 | Pictures | New picture of Gianna Faith-Dawn |
| 28.12.2008 | Taylor Wayne | New story in English |
| 28.12.2008 | Pictures | New pictures of Taylor Wayne |
| 23.12.2008 | Gianna Faith-Dawn | New story in English |
| 15.12.2008 | Deutsche Literatur | Neuer Artikel "Das halte ich nicht noch mal aus" über eine Folgeschwangerschaft |
| 27.11.2008 | deutsche Literatur | Neue Rezension zum Buch "Undendlich Klara" |
| 27.11.2008 | Facts about anencephaly | New link to the research project SBRR |
| 23.10.2008 | Mijn zus | New page in Dutch |
| 08.10.2008 | Links | New link to String of Pearls |
| 07.10.2008 | Carrying to term stories | New links on the CTT page. Maddox trisomy 18 Annabel Grace trisomy 18 |
| 02.10.2008 | 2 million visitors !! | The Anencephalie Information pages have got 2 million (2'000'000) visitors since they were first published December 2000. We are sad that there is a need for such a place, but glad for every family affected by anencephaly who can find helpful information on our site. |
| 01.10.2008 | Pictures | New pictures of Grayson Abbott |
| 30.09.2008 | Grayson Abbott | New story in English |
| 18.09.2008 | Polish site | New site in Polish |
| 08.09.2008 | Links | New link to Chase's slideshow |
| 02.09.2008 | Links | New link to Eden Rebekah's story |
| 28.08.2008 | Links | New link to newspaper stories |
| 27.08.2008 | Links | Neuer Link zu Familien besonderer Kinder |
| 07.08.2008 | Carrying to term page | New link to Jacob Ryan's story (trisomy 18) |
| 04.08.2008 | Carrying to term page | update of the page with new links |
| 04.08.2008 | Pictures | New pictures of Noah Alexander |
| 04.08.2008 | Noah Alexander | Update on Noah's page |
| 30.07.2008 | Vorbereitung der Geburt | Neues Zitat |
| 29.07.2008 | Carrying to term page | New page with links to stories of parents who carried their baby to term despite a poor prenatal diagnosis |
| 22.07.2008 | Links | New links to videos of babies with anencephaly |
| 22.07.2008 | Zion-Grace Elizabeth | New story in English |
| 04.07.2008 | Neue Fotos | Neue Fotos von Rabea und Raphaela |
| 04.07.2008 | Rabea und Raphaela | Neuer Bericht auf Deutsch |
| 23.06.2008 | English links | new medical link |
| 12.06.2008 | Deutsche Literatur | Zwei neue Buchempfehlungen |
| 30.05.2008 | Family and friends | New poem from Eddie's grandma |
| 20.05.2008 | Links | New link to Gabriel James' page |
| 20.05.2008 | Links | New link about grief, a breathtaking story of Calvin and Hobbes |
| 05.05.2008 | Links | Neuer Link zum Verein Weitergehen |
| 18.04.2008 | Marion et Léa | Nouveau témoignage sur Marion et Léa |
| 07.04.2008 | Noah | update on Noah's page |
| 04.04.2008 | Links | New link to the International Federation for Spina Bifida and Hydrocephalus |
| 01.04.2008 | Nederlandse links | New link in dutch to Jonas' pages |
| 11.03.2008 | What family and friends can do | New quotes |
| 11.03.2008 | Preparation of the birth | New quotes |
| 05.03.2008 | Deutsche Links | Neue Links zur Lissenzephalie |
| 03.03.2008 | pictures | New pictures of Isaac Ayden |
| 29.02.2008 | My Child, My Gift | A great resource book is finally available |
| 29.02.2008 | Isaac Ayden | New story in English |
| 14.02.2008 | Austin | New link to an article about Austin's family |
| 02.02.2008 | Noah | update on Noah's page |
| 02.02.2008 | Noah | New story in English |
| 11.01.2008 | pictures | New pictures of Austin John |
| 11.01.2008 | Austin John | New story in English |
| 06.12.2007 | Fakten über Anencephalie | "Forschungsprojekt "Kinder mit Anencephalie" |
| 28.11.2007 | Facts about anencephaly | Research being done about anencephaly |
| 26.11.2007 | Links | New Links: support for carrying to term |
| 19.11.2007 | HON Accreditation | The anencephalie-info site is now accredited by the non governemental organisation HON as a site that provides useful and reliable online medical and health information. This site subscribes to the Code of Conduct (HONcode) principles |
| 19.11.2007 | Chase | New picture of Chase |
| 14.11.2007 | Sandra Maritza | New story in English |
| 06.11.2007 | deutsch | Die neuen deutschen Seiten sind online! |
| 23.10.2007 | nederlands | The new Dutch site is online |
| 18.10.2007 | portuguesa | A nova pàgina em Português està online |
| 15.10.2007 | español | The new Spanish site is online |
| 12.10.2007 | english | The new English site is online |
| 10.10.2007 | italiano | Le nouveau site italien est en ligne |
| 06.10.2007 | français | Le nouveau site français est en ligne |
