Historier om børn med anencefali
"Håb er ikke forventningen om, at noget kommer til at gå godt,
men visheden om at noget er værd at arbejde for;
uanset hvordan det ender."
Vaclav Havel
Da anencefali eller akrani ofte bliver konstateret under en graviditetsscanning, bliver forældre stillet overfor et valg mellem død og liv. Et valg der ofte bliver taget på baggrund af meget begrænset information om, hvad der venter dem. Det er derfor vi har valgt at dele nogle historier om børn med anencefali. Vi håber, at det hjælper dig og giver dig mere klarhed. De følgende historier vil være på engelsk, men først et citat fra en af historierne:
"In the beginning I couldn't imagine how we could possibly go through with this - how I could possibly put my family and my daughter through this. As I accepted it was something that we had to do, I said fine Lord, but I don't think I could ever face him - please take him home soon. As time continued to pass I said fine Lord, I will face my son, but please take him home soon. Now, as my time with him begins to draw to a close, with God's perfect timing - there is an anticipation in my heart to meet my little fighter. Even though the world would not call him perfect, I know he will beautiful to us, and I will be so proud of him."
Holly, mom to Timothy Frank
Sidst opdateret: 09.05.2022
